Tag Archives: mri

Life, in a few words

13 Apr

5:19 pm

It’s mid-working day on a Tuesday, and all I have to say is, I am tired. Like, I know I work from home, but…I feel kind of burnt out. To be sure, I am grateful, which is why and how I keep going, day in and day out; but I’m tired, too. It’s made keeping up with this blog difficult, actually, even though all I need to do is take 20 minutes and jot a post. So, I am finally doing that now…

In a nutshell, my dad was officially diagnosed with mild-to-moderate dementia/Alzheimer’s disease–and um, yeah, if you’re sort of going, well, what does that mean, I am rolling my eyes and thinking the same thing. Life! Why can’t you be who I want you to be! Haha.

The truth is, that’s about as close as we’re going to get, in terms of closure to our questions about the why and how of his recent descent into bizarre thinking and behaving. (And, it’s about the same with getting any definite answers when it comes to menopause: well, your serum levels say this, but…you might feel this, or that; this drug may, or may not, take away some, or all, of your symptoms to some, uh, variable degree…) Insert head-crashing-on-table emoji!

Through a lot of sweat and tears (and PTSD-like anticipatory dread of his phone calls to us and our ever-repetitive answers back to him), we’ve somehow managed (all remotely, with the help of our soon-to-be ex-step-mom and the nursing staff) to get him to stay at the nursing home since December; and get him back and forth for an MRI and then, to see a neurologist, who did an EEG and came back with an official diagnosis (they found evidence of dementia on the scan, which puts *us* at ease, mostly; I think my dad has already forgotten about the entire appointment).

What else? Well, we’ve gotten him through a messy divorce involving cleaning up his dumpster fire of a financial life and applying for Medicaid. One day soon, we’ll have to go back to our home town to “transfer” him (kicking and screaming, I’m sure) to a new facility that takes Medicaid as well as clean out his (our) farm house in order to list it for sale sometime in the late summer or early fall. He’s lived there since 1979, and it’s where I grew up; needless to say, it’s the end of an era, *his* era, but he won’t be around to see what happens to the place that he loved so fiercely that he never left. (My mom bolted us out of there in 1988 after she divorced him; and we only went back to the farm to visit him, once in a while, over the years.)

What have I taken away from this experience? Hmm. Well, I can say for sure that neither my brothers nor myself is in any way interested in buying the farm (he cannot gift it to us on Medicaid) for any kind of old time’s or sentimental sake. Going through this process has made me glad I don’t have kids of my own and clued me in further as to why I never did. And, I am seriously thinking of hitting up a lawyer and having some sort of living will written that explicitly instructs my partner on what to do if I develop dementia.

I’m not sure if I care enough about my dad to look on the bright side; he wasn’t a good father, he didn’t care about his kids when we got older (he cared about himself), and I’ve literally spent my entire adult life trying to build my own wealth because he one, never cared to do so for us when he was younger and two, spent (like, beyond spent) any and all retirement savings he had doing stupid shit. We aren’t jones’ing to visit him in the nursing home; the only time I’ve seen him is on a video doctor’s appointment a few months ago, and he treated me like I was a “little woman.”

I feel bad for him, I do; I feel guilty about not caring that much, even guiltier about letting it go and living my life. But, I have to; my brothers and I have to let go and live our lives. We get to be happy…even though what he’s going through really sucks. No one can live it for him, unfortunately.

That’s mainly what’s been happening here. I am still cranking out 1.5 jobs, wrangling two new mutts (the one needs some serious training–we seem to have finally housetrained her; now we’re working on getting her to not go cray-cray pulling and barking when she sees another dog or human on the walk–and they both need to be treated for heartworm, which the one is getting and the other will get in a few weeks), and managing my post-menopausal stuff (things have gotten better, but it’s up and down; I think that being athletic and sober has really helped my symptoms not be all that bad, relatively speaking). I am still really happy and grateful…and looking forward to life post-vaccine (gulp: we got the Janssen jab a week ago, so…haha, I am just waiting for that two-week mark to come and go without um, a blood clot!?).

On that note, I am being eaten alive and sweating to death; seems the weather has turned to zero breeze and 90% humidity overnight, and the mossies are out in full force, nibbling at my ankles and feet. Hope all are well and I write more soon!

Stay strong, and stay sober. You got this.

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