Tag Archives: parent

Mid-year check-in!

20 May

11:02 am

I can’t believe it’s almost the end of May!? This year, man; I thought 2020 was hard…

I literally only have a few minutes to post, but I wanted to check in and say hi to everyone. I think I’ve got company when I say, life has just been going way too fast and feeling way too busy this year to stop and post about the roses, as it were, on my blog!

In short, I’ve been working a ton of long days, taking care of the dad situation (he has dementia, which seems to be progressing fairly quickly), and um, looking for a new place to live. I am still doing a couple of jobs and have just lined up a possible third–it’s not easy or cheap to live where we live as well as to save quickly to get out of renters’ hell, which we’re actually in right now, to be honest.

My two brothers and I are all vaccinated, so we’re planning to make a trip home next month to see our dad in the nursing home (where he’s been for, wow, six months now) and start the transition into a new facility. We were worried about this process since he’s been so “oppositional” to the entire affair, but these days, his attitude resembles more of a person with depression, so he’ll be more easily swayed to do, well, whatever he’s told. I don’t know if it’s his meds (he’s on two right now) or the dementia, but, he’s just very…out of it. He used to get riled up, call us every day to “get him out of jail,” but these days, it’s like he’s a combination of resigned to his fate and, well, out of it. Like, in a daze. Like, unable to get out of his head. Or, as my brother put it, like his brain is shutting down. One thing I have also noticed is an increasing lack of affection. It’s like, he’s not necessarily forgetting who we are yet, but he seems to be forgetting the emotional connection, as in, he’s not remembering WHY we are who we are to him. So strange. Frankly, having lived through SO many drunken blackouts myself–and spent time wondering about the nature of the blackout–it’s a bit easier for me (than the average “normie,” I guess) to grasp what my dad’s brain is doing now. Like, some of his behavior resembles drunken blackout mode. Anyway, it’s getting easier as we come to accept his state of mind, and, well, as he comes to accept his state of mind (whether that’s because he’s medicated, I don’t know).

Finding a new rental has NOT BEEN EASY, mainly because we’ve been investigating all kinds of options (buying here or elsewhere, buying land and building here, buying a condo versus buying a house). Our landlord wants her house back (slash, drove us out with her ridiculous behavior, but that’s for another post; le sigh)–so, we’ve been busy trying to make our plan, which at this point necessarily includes renting for a while longer. There are so few rentals where we live anymore–post-hurricane and post-pandemic realities that no one is going to get around unless the community chooses ethics over money–and even fewer that take pets (which is why our “pound” is constantly overflowing with stray dogs and cats), so…yeah, it’s been a trip!

All that being said, we’re making our way through it, having a bit of fun in the sun, and well, staying sane. And, I’m happy with that! Haha.

Again, my minutes are up and I now have to run out (literally) and then come home and read journal articles so I can write about them! Hope all are well, and we’ll see you very soon in a longer post…

Oh, and YES, I have wanted to pick up the white wine (there’s a bottle for cooking in our fridge) quite a few times these past few months, but…yeah, no, not gonna happen. I know it’s only a short-term fix, but I also know from experience slipping that, the booze is not going to make my brain or body feel good (it’s going to make my brain feel like radio on static and it’s going to make my peri/menopausal night heat worse).

And…2021? What?

2 Jan

11:59 am

I remember when it was Y2K! Haha. Remember that? Y2K. Remember when that was a thing–I mean, almost as “big” of a thing as Covid? Ahh, to think that we were worried about that, when THIS was what was in store for us, 21 years later.

Jesus, 21 years?

Um, 21 years is sounding like a LONG time to me, at this very moment. Of course, lately, since my dad has been having dementia-related memory problems–and as we (meaning, my brothers and myself) learn how to talk to him in a way that is helpful and constructive–it’s got me thinking a lot about time, aging, and the reliability and (d)evolution of our memories as we get older. Sometimes I wonder if I have some form of early-onset dementia–organizing and cataloguing my thoughts just makes me feel irritated, and I definitely have had moments lately where I’m like, wait, why don’t I remember every gory detail anymore of what happened when?

It’s been saddening, shocking, and angering–yup; this feels like grief, as in, all of the sudden, you’re angry at the thing before you melt into tears (on the inside)–to watch my dad’s mind stop working. And, as a life scientist, I do wonder what is happening up there, with all those neurons. His thought patterns remind me a lot of someone in a blackout; he does not remember minute to minute, sometimes second to second, yet, he is present, conversing, and remembering other things. I noticed that his sense of sequential time is all mixed up, too; sometimes, he’ll recycle the same words or conversations that we have had more than once, months ago, as if he is still there, in that moment. Maybe he is? The other night–he was tired, and I’ve read that people with dementia “sun down” and get looser and more confused at nighttime–he kept saying the same thing, in response to anything I asked him; and, it was totally unrelated to anything. He has been fixated on a couple of things–getting out, and getting to the cordless phone at the nursing station so that he can call strangers to get him out–since Thanksgiving, when he was in the first ER/hospital. He was uber-combative then. Now, he seems to just have accepted what is, or, he has more awareness and/memory around why he is inside to begin with (I guess?).

It’s all really, really hard to understand, what’s going on in his brain. We are doing our best, trying to get him from point a to b to c–some days, I feel really deflated, like someone stunned me (the same feeling I had after the hurricanes ripped through our area and tore many a house down). Some days, like tonight, I rally, do what I am supposed to, and stay on track (tonight, I had to start looking at community-based residential facilities, which is just SO, so sad; with my dad, it’s definitely going to be like putting a rare creature who is used to running on the African savannah into a cage in a zoo). Fortunately, I have my brothers to lean on…

Otherwise, yeah, 2021 feels…a bit quiet so far. It was a busy holiday season, actually, since we did almost everything we usually do as well as I had this whole Dad situation to think about. We had a nice dinner at a friend’s place, went sailing on a catamaran (well, the captain motored us around!), and managed to get to three beaches (it’s been like, hurricane-windy here for the past week, which does not make for great beach days). Many days last week, I vowed to give up writing; most nights, I remembered how grateful I am to have a (writing) job to go back to come Monday (my contract was extended). I watched a movie and started watching “Long Strange Trip”–I can’t believe how young Jerry Garcia was when he died!

I managed to patch up a rough spot with a friend of mine, love more on our neighbor dog–we have a special connection since she was my Best Girl’s “angel”–and just lounge around with our new pup on my lap (he is quite the needy boy!). I’ve been running, too, but the hills are not easy on the knees and uh, I have some residual joint pain from the estrogen patch (sure of this; I have no clue why estrogen replacement therapy would cause your body to react as if its joints were arthritic, and I have honestly stopped wondering–see, is this dementia? I am just too tired to care anymore; I am not dying, so all is well, right?).

We actually masked up and went out for sushi on New Year’s Eve; it was quiet around town, and we were home and in our jammies by 10:30. LOL. I really Could Not Even with this year’s New Year’s Eve; I mean, everything was messed up, tossed around, twisted into a new shape during 2020, so, “celebrating” NYE took on a different meaning for me this year, as in, who really cares? Haha.

I haven’t felt much like dwelling on the literal lately, as I said–and so, it’s been hard to come up with some sort of “yearly word.” At first, I was like, God, I’m too tired to care. However, the more I journaled today, the more I felt something brewing…

This year might just be about finally letting go of my expectations, my past projects and goals and dreams–and setting new ones that I want to do, that fit, that feel right. And, if they stop feeling right, move on. It’s like, I don’t have the energy to hang onto my old self and old dreams anymore, you know? Maybe because my heart feels crushed by watching my dad lose his mind?

One of my fondest memories of my dad keeps coming back to this (and, it makes me want to cry every night, because I look up at the sky every night): because he was a trained merchant marine (a sailor), he knew the night sky very well. He knew a lot of things very well, and he could entertain people endlessly with his facts and figures. Anyway, whenever we’d be outside on a summer night on the farm, looking up at the stars–so many, so bright–he’d point and say, Look, that’s Sirius. There, that’s Benetnash and Mizar; there’s Alioth, Megrez, Phad, Merak, Dubhe–all the stars in the Big Dipper. It was ridiculous because, well, most people never even heard of these stars let alone could point them out in the night sky.

Maybe that’s why I go out now, and look up; I want to remember him.

And, I want him to remember, too. I want him to look up, to see the night sky, to remember pointing up, There, that’s Benetnash and Mizar; there’s Alioth, Megrez, Phad

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